A 32-year-old mother from Pennsylvania recounts her experience with having a baby born with a limb difference, in hopes of encouraging other parents. After a year after releasing a video of her kid with amniotic band syndrome, Nicole Edwards posts another video on October 7, days after her daughter’s first birthday, to raise awareness for other parents. The syndrome is defined as “a rare disorder in which a band in the fetus’s amniotic sac constricts or even amputates a section of the body.”
My major objective was to show them that everything will be OK. “Your kid will be happy, and all you have to do is be there to support and love them,” Edwards added. ” “It’s okay to feel angry or sad; it doesn’t make you any less of a mother or father.” She has been on a quest to educate herself on the ailment, which she had never heard of before, and to raise awareness about the syndrome among others. She has also gotten assistance and support from internet forums and other mothers.
Nicole Edwards described her first year as a mother as full of ups and downs as well as learning opportunities. The infant was plainly irritated by the discrepancies in her limbs that she had seen and that, as she gets older, she would have to explain to her daughter with elegance and honesty. She advises other parents who have children with limb differences to “never restrict them” and to aid them as soon as they let you know. Nicole wants Sage to know that she is the most incredible person, her greatest friend, and that they will always be inseparable. “You are very capable, and I adore you,” the mother replied.