After only a few years together, they were engaged and excited to tell their loved ones that Andrea was expecting their first child. Andrea was overjoyed. After only eleven weeks, the joy was quickly replaced by sorrow. Andrea, unfortunately, had to have a miscarriage.Andrea expressed her feelings on the Love What Matters Facebook page:
“I was a complete wreck. I had no idea what to do, who to talk to, what to talk about, or who could help me. I had no idea that one in every four women experienced the same thing, and that people just don’t talk about it. I wasn’t sure I could handle being pregnant again.” Andrea’s husband was there for her every step of the way, and she began to feel less anxious after a while. Fortunately, she conceived again.
She vowed to take extra precautions this time to ensure her child got off to a healthy start in life. She gave up many of her favorite foods, including sushi and certain cheeses.Andrea’s husband was there for her every step of the way, and she began to feel less anxious after a while. Fortunately, she conceived again. She vowed to take extra precautions this time to ensure her child got off to a healthy start in life.
She gave up many of her favorite foods, including sushi and certain cheeses.She also began reading pregnancy books like they were out of fashion, convinced that everything would be fine this time. Her term came to an end as expected. She arrived at the hospital on time, where she and her partner were admitted to a delivery room and began having mild contractions.
An ultrasound revealed that almost no amniotic fluid remained, which delayed her discharge from the hospital. Inducing labor was an immediate requirement.Thankfully, the delivery went smoothly. Andrea and her husband’s son, Adam, was born before the night was out. However, Andrea’s partner was never able to perform the traditional umbilical chord cutting.
Instead, Adam was whisked away from his parents in a flurry of medical personnel activity. Andrea’s husband caught a glimpse of their child over the shoulder of a swarm of doctors. He then returned Andrea’s gaze and said, “Honey, there’s something wrong with Adam’s leg.” There were about twenty people gathered around Adam, the toddler. Andrea’s anxiety grew as she waited for an answer.
Andrea’s mother and boyfriend went outside to inform relatives, leaving her alone in the hospital. No one has ever explained what is wrong with her infant. After some time, Adam was diagnosed with CMTC, a rare type of vascular malformation. Andrea and her husband were both speechless. When their son was born, only 500 cases of the condition had ever been reported.Adam’s vital organs were subjected to a battery of tests, all of which were negative.
Andrea finally went home to sleep after four days in the neonatal intensive care unit. Adam was sent home with detailed instructions for taking care of his skin after the treatment was successful. However, it became clear over time that Adam was a true fighter.
He’s grown into a healthy young man who enjoys puzzles and chess. Despite the fact that his disease has made his leg weak, he has been able to participate in sports. Adam has always been aware that he is different from the other kids, but he has never let his disability limit him. Andrea West has remained involved with the CMTC Alliance, a global nonprofit that works to improve the lives of people who have been diagnosed with rare vascular malformations.
She is an advocate for those who are afflicted with these diseases and works tirelessly to raise public awareness about them. If you want to help those suffering from rare diseases, please consider spreading Adam’s story and donating to the charity. Those suffering from rare diseases will greatly benefit from your generosity.